6 Things Nobody Tells You About Lipedema After Menopause
From a lymphedema therapist who has it herself.
I've had lipedema since I was twelve. So did my mother, and so did her mother before her.
I also spent twenty-four years as a certified lymphedema therapist, treating women with the exact thing I have. So when I tell you I understand this, I mean I've been treating it all day and then going home in it.
And none of it prepared me for what menopause did. My thighs ballooned faster in three years than in the previous thirty. I did everything I'd spent my career prescribing to other women. The drainage, the plate, the dry brush, the garments that cost more than my shoes.
None of it held.
It took me four months of late nights and studies I paid for out of my own pocket to work out why. And what I found is the reason nothing I was doing, or prescribing, ever worked for longer than a few days. Here are the six things nobody tells you.
Grace Faris, CLTβ Verified
Certified Lymphedema Therapist, 24 yrs
6. So here's what I now recommend to my patients instead.
Once I understood the problem, the answer was almost insultingly simple.
If the muscle is the pump, and the muscle has faded, you have to make it contract again. Really contract, not vibrate near it, not get rubbed by someone else's hands. And every day, because the pump was built to run constantly.
Normally you'd rebuild a muscle by working it. But lipedema makes that its own cruelty, because moving hurts, and the exercises they hand you are the exact thing your legs won't let you do.
So the answer is a technology that does the contracting for you, without you moving a thing. It's called EMS, and physiotherapy departments have used it for years to keep muscle from wasting when a patient can't move. Nobody thought to point it at us.
It's built into a pair of shorts called Novu. The pads sit over the glutes and upper thighs, right on the drainage route. Fifteen minutes a day, and you feel the muscle work in the first ten seconds.
It won't feel like much for the first couple of weeks. Then the heaviness starts to lift, usually around three weeks in. It's the first thing in twenty-four years that moved the fluid instead of just managing it.
See the shorts I recommend β
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I managed this thing for nearly thirty years and then menopause and it all came apart. My drainage lady is lovely but I'm back to square one by Friday every single week. Nobody has ever once explained WHY to me. Reading this at 6am and I'm actually angry.
The vibration plate is under my bed. It's been under my bed since February. This stung.
Mine's under the bed too π© solidarity
Diagnosed at 34 after 20 years of being told I ate too much. Managed it fine until about 49 and then it fell apart and my doctor said give it time and it would settle down. That was six years ago. Still waiting for it to settle down.
Three weeks in. Being honest, first fortnight I felt absolutely nothing and I'd decided to send them back. This week my compression went on easier in the morning. Not a miracle. But it's the first thing in five years that's gone the right way.
My mother had this. My sister has this. I know exactly where I'm going and that's the part that keeps me up at night.
Genuine question, is this safe with venous insufficiency? I've got the varicose veins on top of everything else and I don't want to make things worse.
Angela, please ask your own clinician because I don't know your history. In general EMS is contraindicated with a pacemaker, in pregnancy, over an active clot, and over broken skin. Take it to your team. Don't take a stranger's word for it, including mine.
Skeptical, if I'm honest. I have bought a LOT of things. But it's fifteen minutes on the sofa and I'm already on the sofa, so.
I had to order a second pair because my sister kept "borrowing" mine π
Has anyone over 65 used these? I'm 68 and I've had this since I was a teenager.
Deborah I'm 61 and I'm getting on fine with them. Start on the lowest level.
The bit about sitting down more because it hurts, and then it getting worse BECAUSE you sat down. That's it. That's the whole thing. I've spent four years thinking I was just lazy.